Thursday, September 12, 2013

Let’s be proactive!



Today I had the pleasure of meeting some very amazing visually disabled young adults.  We shared our stories with each other across a luncheon table eating chicken fajitas.  There are many degrees of visual impairment and this was evident at the luncheon table today. The degrees range from those who have partial sight and manage the task of eating quite well to those who need assistance with pesky condiment packages and placement of food on a plate for example.  My friend who joined me today who is sighted was amazed at how visually impaired folks operate.  She is used to clumsy ole me who still has a fair amount of sight and when you see me sitting without my cane, you wouldn’t know I can’t see well.  I’ll admit the first time you are around a few blind people, it changes your life.  My life was changed forever by going to the National Federation of the Blind Conference this year, but that’s a story for another post.   The part of this story that I want to share with you most of all is this.  There were three young adults there that I had the pleasure of having conversation with.  I’ll call the first young man Thomas.  Thomas was in his early twenties and has no vision at all.  He had recently been laid off from his job at a local restaurant.  His job at this local restaurant was rolling silverware.  Thomas wants a more productive, self-sufficient life and is now getting the training he needs to be a successful blind person through the rehabilitation center in Daytona Florida and the Division of Blind Services. It infuriated me that he hasn’t had this opportunity before and that even though the said restaurant may have thought they were being kind giving Thomas that job in the first place, it’s an insult.  Blind people have much more to offer this world.  Now don’t get me wrong ive been in the hospitality industry a long time and rolling silverware is part of many servers jobs and am not saying there is anything wrong with doing that task.  What I’m saying is that it’s sad that is one of the limited types of jobs a blind man has offered to him because of lack of awareness and proper training.
The second story I heard today was also a young man in his mid-twenties, who unlike Thomas had partial sight, but is considered legally blind.  I’ll call this young man Kevin.  Kevin has gone through our public school system but somehow didn’t make it to college.  So for the last four years he’s been trying to find a job unsuccessfully and living with his mother.  The thing about Kevin’s story is that neither he nor his family knew how to advocate for Kevin so that he could have the skills & training and the opportunity for funding to go to college.  Nobody came looking for Kevin to say hey there’s help out there are programs designed just for the visually disabled.  Because Kevin has sight in one eye he and his family didn’t think he was eligible for services.   Kevin has RP. Retinitis pigmentosa (RP) a degenerative eye disease which qualifies him even if he can still see.  Kevin’s story really touched me because it’s so similar to mine.  Blind in one eye, sighted in the other.  Not getting assistance until it gets to the point that you cannot drive nor do simple everyday tasks.  Shouldn’t we get the training and skills before the vision loss?  Shouldn’t we be more proactive instead of reactive?  I think so.   Luckily Kevin is now getting the training he needs.

The third person I had lunch with today is a lovely young lady I met at the NFB conference in Orlando earlier this year.  She has no sight, been blind from birth.  I’ll call her Vicky.  Vicky never graduated from High school.  She was never taught braille.  She lives with her sister and collects disability but Vicky is sick of relying on other people and doesn’t want to be a burden to her family.  So this brave young girl got a scholarship to the NFB conference.  Vicky learned as did I at the NFB conference how to advocate for herself and get the help needed to succeed.   She is finishing blind school and then Vicky plans on getting her GED.

What I learned from today is that there are many many situations like, Thomas, Kevin & Vicky’s.  Its actually more common than you think and the lack of education, training, job placement and independent living for the disabled is quite extensive.  Many people fall through the cracks, get lost in the system or never get in the system in the first place.  I’m honored to have spent my lunch hour with such determined individuals.  Hearing their stories only fuels the fire inside me to do something about it.  There is such an overwhelming need for outreach programs to find struggling people like Thomas, Kevin & Vicky.  Not only do I feel I need to advocate for myself in a world designed to fail those with disabilities but I want to be of service to those like me.  I’d love to see a system that is proactive rather than reactive.  How does that happen?  I’m not sure but I’m going to keep fighting to find a way.    

A few helpful links to assistance education, programs, organizations etc that I have found this year in no particular order of importance….as I find more resources I will tag on this blog.  Email me or post a comment if you have any questions and I’ll do my best to help you.

Division of Blind Services of Florida
Mission Statement: To ensure blind and visually-impaired Floridians have the tools, support and opportunity to achieve success
Vision Statement: In partnership with others, create a barrier free environment in the lives of Floridians with visual disabilities.

NOTE-each state has a similar department, search the web or contact your department of education for more info

National Federation of the Blind

American Foundation for the Blind
http://www.afb.org/default.aspx

National Library Service-NLS
Through a national network of cooperating libraries, NLS administers a free library program of braille and audio materials circulated to eligible borrowers in the United States by postage-free mail.

Hadley School for the Blind
Our mission is to promote independent living through lifelong, distance education programs for people who are blind or visually impaired, their families and blindness service providers.

Perkins School for the Blind

Bookshare
Accessable online library
Note-free for qualified us students.  I’m a student of Hadley which is free so I also got bookshare for free!

Jerrigan Institute

NFB-Newsline
FREE SERVICE TO THOSE WHO CANNOT READ REGULAR NEWSPRINT!

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